The Cystic Fibrosis (CF) Service at Queensland Children’s Hospital (QCH) is the largest paediatric CF clinic in Australia. We provide comprehensive specialist care for all children diagnosed with CF across Queensland and Northern New South Wales. Presently we care for around 450 children and adolescents from birth until age 18 years. Every year around 20 newly diagnosed babies are referred to QCH CF clinic from Queensland, interstate and overseas. We have a dedicated multidisciplinary CF team who provide inpatient, outpatient and community liaison services. We also provide outreach services to regional hospitals to help deliver CF care closer to home and are actively involved in the education and training of health professionals who care for children with CF from around the state. We have an established research unit and we are involved in national and international clinical trials of new CF therapies. Show
The CF telephone serviceOur CF nurses provide a telephone service for patients and carers during office hours (Monday to Friday, 8am-4pm). There is also a 24-hour physician on-call service for patients with CF operating out of QCH. Transition to adult CF servicesThe paediatric clinic at QCH has strong links with the adult CF services at The Prince Charles Hospital and the Mater Adult Hospital. As children grow and mature we assist with their transition to adult care by educating teenagers about their health, supporting and encouraging self-care and promoting positive health behaviours. We work closely with the adult CF centres to ensure that the transfer of our adolescent patients across to the adult CF services is timely and seamless. ResearchThe CF clinic at QCH is actively engaged in cystic fibrosis research including national and international clinical trials of new CF treatments. ClinicsOutreach CF services are available twice yearly throughout Queensland in the following locations:
Contact your local hospital in these areas for more information. Who can access this service?All children with cystic fibrosis aged from birth to their 18th birthday can access this service. Catchment areaThe Cystic Fibrosis service is available to children living in Queensland and Northern New South Wales. CF services are also available to children with CF living in other areas in accordance with state and national agreements. Do I need a referral?You will need a formal referral to access this service. How do I get a referral?Referrals are accepted from:
Other referral informationInfants newly diagnosed through newborn screeningBabies newly diagnosed with cystic fibrosis through newborn screening (the heel prick test) will automatically receive an appointment at the CF clinic. Parents/carers will be contacted by the CF clinic nurse to arrange their first appointment. Please bring the following items to your child’s appointment:
For enquiries regarding referrals or for more information contact us on 07 3068 2300. Information for health professionalsThe Cystic Fibrosis service at QCH provides specialist multidisciplinary care for all aspects of CF. The CF service provides:
Referral instructionsNewly diagnosed patients may be referred to the cystic fibrosis service by contacting the CF specialist nurse via the Queensland Children’s Hospital switchboard during office hours. The CF clinic receives notification of all newly diagnosed infants with CF through the state wide newborn screening program. Parents and carers of newly diagnosed infants are contacted by the CF nurse to arrange an appointment. Referrals for children with CF who have recently relocated to Queensland are accepted, up to a child’s 16th birthday. After 16 years of age the patient may be referred to adult services where appropriate. The clinic requires a referral letter from the child’s previous CF specialist and an indefinite referral from their local general practitioner for continuing care. Patients/carers should be advised to bring the following items to their child’s appointment:
Useful linksCystic Fibrosis Standards of Care Australia 2008 Our teamResearch and experience has shown that the best way to care for children with CF is through a multidisciplinary approach. We have a dedicated multidisciplinary CF team made up of specialist cystic fibrosis doctors and nurses, dietitians, physiotherapists, social workers, occupational therapists, and mental health professionals. We also have access to a wide range of paediatric medical and surgical specialists, along with diagnostic and pharmacy services to support our patients in all aspects of CF care. We believe the best way to care for children with CF is through a strong, cooperative partnership between patients, their families and their CF team. We practice family centred care and aim to tailor CF treatment to suit the individual child and family wherever possible. 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The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. Demographics of study patients with cystic fibrosis.
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